- By Livethegoodlife
- November 1, 2013 at 12:15 pm
I had RAI after my TT in July and didn't have very many issues with it at all. I did it in isolation at the hospital and it was very effective. The only real side effect was my taste is off a bit and I was tired for a bit afterwards but nothing more than anything else. I can't imagine any thyroid oncologist not recommending RAI but it's always good to check out all the options especially if you are young. I'm searching for a second opinion doc and am set up to see Dr. Kenneth Ain at Univ of KY. He wrote the book so many of us have lived by. After doing all my research and getting care of Moffitt Cancer Center that is world renowned I have decided Dr Ain is the best choice for me and I've gotten good feedback on this site about him. He ONLY does thyroid and his wife is also on endocrinologist only specializing in thyroid cancer research. Google him and you can also email him and he actually replies!
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- By Euphemia
- November 1, 2013 at 1:17 pm
This is just to offer another perspective. Unless he has changed his mind recently, Dr. Ain seems to give every low risk patient (except those with tumors under 1 cm), an empiric dose of 100 mCi. Most of the research is now recommending against this practice, as studies show that it does not benefit low risk patients and may even harm them. Many of things that doctors recommended in the past about RAI have recently been shown to be incorrect. The trend is for less RAI or none.
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- By Euphemia
Hi: Here's a new study which found that RAI treatment doesn't affect the recurrence rate for patients with microscopic capsular invasion:
http://onlinelibrary.wiley.com/doi/10.1111/ajco.12159/abstract;jsessionid=C 8E8BD1F53EC125912D7470200CA70B0.f03t04?deniedAccessCustomisedMessage=&userI sAuthenticated=false
http://onlinelibrary.wiley.com/doi/10.1111/ajco.12159/abstract;jsessionid=C 8E8BD1F53EC125912D7470200CA70B0.f03t04?deniedAccessCustomisedMessage=&userI sAuthenticated=false
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- By kkane01
- November 3, 2013 at 1:03 pm
Hi,
I'm about two months out from TT with follicular cancer surgery. I live in Marin County in Northern Ca. I tried to get to see Orloff at UCSF, but didn't want to wait forever (it would have been months). My endo is Eric Buxton, but he is also hard to get an appointment with. Here is what I have discovered. UCSF still uses RAI as there "go to" treatment (no matter what). Mayo and other places have backed off and only use it sparingly. I have decided not to have it unless the cancer has spread (which there is no sign of happening). I had a great surgeon, Dr. Agbayani, in Greenbrae. But, the endo makes the decision about an RAI recommendation. Right now, they would have to convince me I was going to die tomorrow, before I would do it. And, they don't do in the hospital here, so I would have to board my cats, change my whole life, and perhaps have some not so great side effects. Also, I'm 68 and don't want to put my liver and kidneys through the stress of getting rid of all that radioactive iodine. And since my cancer came from radiation as a child, it seems crazy to do more of it to get rid of it. Second opinions are great, if you can get into see a good endo. I do recommend Dr. Buxton, but I don't know when he would see you. But, even if you would have to wait, it might be worth it before having more treatment. Sending prayers and healing thoughts.
I'm about two months out from TT with follicular cancer surgery. I live in Marin County in Northern Ca. I tried to get to see Orloff at UCSF, but didn't want to wait forever (it would have been months). My endo is Eric Buxton, but he is also hard to get an appointment with. Here is what I have discovered. UCSF still uses RAI as there "go to" treatment (no matter what). Mayo and other places have backed off and only use it sparingly. I have decided not to have it unless the cancer has spread (which there is no sign of happening). I had a great surgeon, Dr. Agbayani, in Greenbrae. But, the endo makes the decision about an RAI recommendation. Right now, they would have to convince me I was going to die tomorrow, before I would do it. And, they don't do in the hospital here, so I would have to board my cats, change my whole life, and perhaps have some not so great side effects. Also, I'm 68 and don't want to put my liver and kidneys through the stress of getting rid of all that radioactive iodine. And since my cancer came from radiation as a child, it seems crazy to do more of it to get rid of it. Second opinions are great, if you can get into see a good endo. I do recommend Dr. Buxton, but I don't know when he would see you. But, even if you would have to wait, it might be worth it before having more treatment. Sending prayers and healing thoughts.
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